Ammon had his 15 month well check today. He is improving his skills with the help of his ECI therapists, but he is still behind. I had a frank conversation with his doctor and let her know that if we are going to do any kind of tests, it needs to happen this month before we pretty much don't have insurance anymore. (Not completely true- we will have insurance - it just won't feel like it.)
So he got blood taken today and urine samples taken and we are making an appointment with a pediatric neurologist. Let's see if anything pops up.
And things are progressing with Tanya. Check out her blog - she's the one at the top at the moment since she is basically updating daily. In another week or two, I should get a call about the results from my blood test.
So Tanya assures me that the "transplant" is like donating blood. The doctor will give the donor meds to pump up the stem cells and then collect them during a blood skimming for lack of a better word. That is just how it sounds to me. They cycle the blood out and back in while collecting the platelets or stem cells. I'm not too keen on watching my blood being cycled, but it could be much worse. I'm just glad a procedure exists to help get her healed. She's got more life to live and lives to get here I think.
Anyway - first week of school done. It felt like a month. I still have a pile of schedule changes on the desk. We all do. And it's tough cuz everyone is very impatient to have their schedules fixed right now - which isn't exactly humanly possible. I keep trying to tell kids and parents that, but honestly if they wouldn't interrupt we could get it done faster.
No comments:
Post a Comment